Feelings ...
Sometimes, one of the hardest thing to deal with emotionally is the fact that people assume you should handle this easily and well because hip dysplasia is treatable. The truth is often far from this. Hip dysplasia may seem trivial to an outsider but it rarely is. In addition to worrying about your child, there are doctor visits, expenses and changes in your normal routine that other parents don't experience.
There's often a sense of sadness involved because a soft, "normal", little baby was probably expected. There may be some hidden resentment towards other mothers for having those perfect babies. Even pretty baby clothes suddenly won't fit.
No matter if your baby is in treatment for six weeks or two years - your feelings are real and they matter a lot. Try to ignore people who invalidate those feelings.
It can also be really hard to watch as your baby undergoes certain treatments. Screaming, crying and lashing out are all common during examinations. The baby may seem uncomfortable in their brace, harness, or Spica Cast (click for tips).
Connect with Other Parents
There are places and people who will help, and some will be more useful to you than others. Often the best sounding boards are those who are also going through it.
Currently, the most active online parent group for infant hip dysplasia is the Yahoo Hip Baby Group, in addition to the IHDI Facebook Page. Though the IHDI cannot be responsible for information on any external sites, some of these online groups have a good track record for being very helpful for parents seeking advice and encouragement from other parents experiencing similar challenges and successes.
If you'd like to explore more online groups, there is a longer list here (including others like the Yahoo Hip Baby Group and the IHDI Facebook page). If you know of a group that is not listed, please Contact Us to let us know.
Other people to talk to may include your pediatrician, primary care physician, psychiatrist, or a caring friend or relative.
*Much of this information is courtesy of the wonderful and caring people at www.hip-baby.org
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Treatment Tips for Parents